cross-posted from: https://lemmy.ml/post/1181011

We want the right to privacy over our medical records. This means having control over our personal health information, who has access to this information and for what purpose.

We demand you to amend the European Health Data Space by:

  • Requiring explicit consent from patients regarding sharing of medical records for purposes not directly related to treatment(aka for secondary use)
  • Limiting the extensive categories of ‘health data’
  • Narrowing the scope of how this information can be used, and who can access it
  • The Doctor@lemmy.ml
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    1 year ago

    I think it’s a little too late. Amazon already bought One Medical, which is the only non-hospital medical provider in a lot of areas. That means they have access to all of the medical records.