:O I’ve never met anyone with chronic pain before and today I found 2-in-1-thread LOL
Can I ask you some questions? I guess I have chronic pain too because I got tested for EVERYTHING, TWICE and no doctor found anything so that’s the only explanation I’ve found for my several-years-long-tummy-ache
I'll spoiler this just because I don't want to make this comment too long x3
Most of the time I don’t even notice it but when I do it varies from a 2 to a 7 on the let-the-bodies-hit-the-floor scale xP but lower levels are more common than higher levels. How is it for you?
And is this something I should worry about? Like will it get worse or better or be a priblem in the future? There have been some days when I couldn’t go to school because the pain was too much, it’s kind of rare but it has happened, so I guess when I get a job I might need some way to verify that I genuinely couldn’t go just in case it happens. And is there any way to calm the pain down? Because the pain killers I have at home don’t work
Ok I think this comment is long enough now, sorry about that x3
I’m sorry to hear you’ve been struggling not only with the pain but also with getting a diagnosis, that’s definitely something a lot of people with chronic pain face, and it makes getting any sort of support so much harder.
I wouldn’t be able to tell you if things will get better or worse, or how your pain compares to mine or anyone else’s, because each condition, and body, are different, but by the sound of it it is probably something you should be keeping an eye on and continue seeking help with, since it seems to be having a serious impact on you and you shouldn’t have to just put up with it.
I know how hard it can be to try and navigate the medical world and deal with people who think they know so much better than you (even though it’s your body!), and that this is easier said than done - but try not to feel invalidated by their lack of understanding.
Have you got even an idea of what your condition might be? Finding a community of people with similar conditions/symptoms (my pain is mostly musculoskeletal in nature, so unfortunately I wouldn’t be able to point you to anywhere relevant) can be a great help since they might have resources and tools you wouldn’t know of otherwise, and even advice or information you can take to your GP to back your position.
I hope that helps some, I wish I had a more definite answer to give, but either way, you have my virtual support… 💙
Good to know there’s more like me xP Yeah I’ll look for more info and talk about it with my family doctor! (is that how you call that?) And what is GP? is it just another term for family doctor?
Yeah, GP is the family doctor (it stands for General Practitioner), and if they can’t help, see if they can refer you to a specialist (in your case it would probably be a gastroenterologist to start with) who will know more in depth information and have access to more through tests.
:O I’ve never met anyone with chronic pain before and today I found 2-in-1-thread LOL
Can I ask you some questions? I guess I have chronic pain too because I got tested for EVERYTHING, TWICE and no doctor found anything so that’s the only explanation I’ve found for my several-years-long-tummy-ache
I'll spoiler this just because I don't want to make this comment too long x3
Most of the time I don’t even notice it but when I do it varies from a 2 to a 7 on the let-the-bodies-hit-the-floor scale xP but lower levels are more common than higher levels. How is it for you?
And is this something I should worry about? Like will it get worse or better or be a priblem in the future? There have been some days when I couldn’t go to school because the pain was too much, it’s kind of rare but it has happened, so I guess when I get a job I might need some way to verify that I genuinely couldn’t go just in case it happens. And is there any way to calm the pain down? Because the pain killers I have at home don’t work
Ok I think this comment is long enough now, sorry about that x3
Hi there fellow sufferer lol 👋
I’m sorry to hear you’ve been struggling not only with the pain but also with getting a diagnosis, that’s definitely something a lot of people with chronic pain face, and it makes getting any sort of support so much harder.
I wouldn’t be able to tell you if things will get better or worse, or how your pain compares to mine or anyone else’s, because each condition, and body, are different, but by the sound of it it is probably something you should be keeping an eye on and continue seeking help with, since it seems to be having a serious impact on you and you shouldn’t have to just put up with it.
I know how hard it can be to try and navigate the medical world and deal with people who think they know so much better than you (even though it’s your body!), and that this is easier said than done - but try not to feel invalidated by their lack of understanding.
Have you got even an idea of what your condition might be? Finding a community of people with similar conditions/symptoms (my pain is mostly musculoskeletal in nature, so unfortunately I wouldn’t be able to point you to anywhere relevant) can be a great help since they might have resources and tools you wouldn’t know of otherwise, and even advice or information you can take to your GP to back your position.
I hope that helps some, I wish I had a more definite answer to give, but either way, you have my virtual support… 💙
Good to know there’s more like me xP Yeah I’ll look for more info and talk about it with my family doctor! (is that how you call that?) And what is GP? is it just another term for family doctor?
Tysm for the virtual support! <3
There are dozens of us! lol
Yeah, GP is the family doctor (it stands for General Practitioner), and if they can’t help, see if they can refer you to a specialist (in your case it would probably be a gastroenterologist to start with) who will know more in depth information and have access to more through tests.
I really hope they can help!